GIVING AUTISM A VOICE: Funding should be geared more for quality of life-Pahrump Valley times

GIVING AUTISM A VOICE: Funding should be geared more for quality of life
GIVING AUTISM A VOICE: Funding should be geared more for quality of life
GIVING AUTISM A VOICE: Funding should be geared more for quality of life

http://pvtimes.com/community/giving-autism-a-voice-funding-should-be-geared-more-for-quality-of-life/

We were in the Pahrumnp Valley Times news paper today, A mention on the front page as well as on the front of the community section as well.

Here is a copy of the article–>

By Kelsey Givens
One in every 88.
That’s the alarming rate in which children in the United States today are being diagnosed with autism, according to the National Autism Association.
People in every state, city and community are seeing the effects of this developmental disability.
Not everyone touched by it, however, has the financial ability to go out and purchase items to better the lives of individuals living with it.
Knowing the affects of the condition first-hand, one man is trying, with the help of investors, to get his nonprofit up and running in order to actively place technology and the arts in the hands of disadvantaged families with autistic children and young adults.
David Berkowitz, a Las Vegas native, has Asperger’s Syndrome, a high-functioning form of autism, and three children who have also been diagnosed with some degree of autism as well.
A retired veteran currently working in sales, he started his foundation, Autism Advocacy and Technology News Zone, last year with the hope of raising money to buy and donate technology, music and the arts to families and schools working to educate and better the lives of people with autism.
“As an individual with high-functioning Asperger syndrome and the father of three kids who are also on the spectrum for this disorder, I have always felt a need to make a difference for people with autism,” Berkowitz said in a statement.
“As we get funded we intend to help those on the autism spectrum by giving the gift of the arts and technology to make the lives of people with autism better, and to support their families and the educational facilities that serve them. We are determined to make a difference in the lives of people with autism and their families,” he said.
According to the National Autism Association, autism is a “bio-neurological developmental disability.”
Generally appearing before the age of 3, this condition generally affects the development of areas in the brain which control social interactions, communication and cognitive development.
The NAA states autism is four times as likely to affect males as females, and 40 percent of children diagnosed with the disability typically don’t speak.
Sadly, the association also reports that while autism has become one of the fastest growing developmental disorders in the nation, it is also one of the most severely underfunded.
While some organizations exist to raise funds for the study of how autism affects people, Berkowitz said he wants to focus more on helping enrich these individuals’ lives.
“Were trying to help create an autism foundation for quality of life and education because no one is really doing it,” he said.
Berkowitz explained items like iPads, other electronic tablets and musical instruments are very kinesthetic devices, which make learning much easier for those on the autism spectrum.
He hopes by being able to provide these types of learning tools to families and schools, he can help enrich the lives of those with autism, while also giving them another way to communicate and interact with the people and world around them.
“A lot of families with autistic kids aren’t rich, they can’t afford to just go out and buy these things,” Berkowitz said.
And by introducing more music and the arts to people with autism, Berkowitz said he believes it may be possible for these kids to find an easier way of expressing themselves or finding a talent they would have never known they had.
“Half the time you don’t even know if they could succeed in these areas and don’t have the money to even give them the chance,” he said.
By gaining funding through partnerships and donations, Berkowitz wants to not only purchase the tools but possibly sponsor activities such as artist meet and greets, free concert tickets or special events to help raise awareness for autism.
Lack of money is keeping the dream from becoming reality.
“The first help we need is funding for the 501(c)(3), as well as a lawyer or CPA to do the paperwork properly. We also need exposure such as TV, in the newspaper, magazines and web-based as well. We can not do it alone and need support to make a real difference,” Berkowitz writes on his website.
“What we really need is for some other organization or company to partner with us so we can get the accreditation. There’s not much we can do until we can get that and it’s expensive.”
Berkowitz said it can cost thousands to become an accredited organization.
“I’m not rich, I can’t just go out and pay for this myself,” he said. “We have to start somewhere, and maybe by reaching out to the community someone will be willing to help us.”
While the organization seems to be hitting a wall in the way of funding, it isn’t for lack of trying.
Berkowitz has gone on several news shows, Internet radio shows and use of social media in an attempt to get the word out about what he is trying to do.
“There are a lot of people spreading the word about us on Twitter, and we’ve been featured on SpecialNeeds.com,” he said.
While the name of the organization is continuously put out there, “it has been a struggle to reach people able to help,” Berkowitz said.
Currently Autism Advocacy and Technology News Zone have a board of only two people; Berkowitz and his wife Michele. But Berkowitz said he knows several people that have said they would join once the group is accredited.
The group is based out of Las Vegas, where Berkowitz lives, but he said he doesn’t want to be limited to helping only those in the city. He wants to reach out to all surrounding area families as well, areas like Pahrump, to be able to help families dealing with autism.
“Autism affects you socially, and my family understands that, we’re living those lives ourselves,” Berkowitz said.
“I am smart, different and am going about it on my own; I need support so that I can help other people with autism,” he said.
The foundation currently had its own website technewszone.com.
Anyone interested in donating to the organization or trying to help them reach their goal of becoming a certified 501(c)(3) can go there for more information.
Berkowitz can also be reached by email for more information on how you can help at davidb@technewszone.com.

I appreciate it a great deal!!!

Aspergers Syndrome The Hidden Disorder by Mari Nosal

autism nosal pict
autism nosal pict
autism nosal pict

This article is very valid. I am asperger’s, have always been a brainiac so was considered a bit different but normal. In 43 years, I have had few friends. I am married but other than my wife, I have had no real friends in decades. I want friends,but people do not get me. I reach out to people and ask them to help my non-profit but it is a struggle.

I hear from people all the time, that I need to work on this or that socially, or to slow down, or simplify. It really annoys me at time, why should I have to change who I am for them, why can’t they expand their level of understanding. I am told your eye contact is bad,it has hurt me many times over the years in job interviews because I talk fast, and have poor eye contact. As LMFAO says sort of, I am autistic and I know it..

I really like Mari’s article and can relate in many regards.

Lately, I haven been observing comments regarding what Aspergers is, how it effects the lives and family of individuals living with this syndrome , their family, and individuals whom they have daily interaction with. My experiences and opinions conveyed in this article are not internet and research related. They are resultant from bringing up a son who lives with Aspergers daily.

Aspergers is not outgrown, nor curable. Individuals with Aspergers merely learn compensatory strategies as they grow and silently struggle daily with their difficulty communicating, working with, and living with the neurotypical population. Aspergerers is a neurological disorder which effects many aspects of their daily lives. Because they tend to have normal to above normal I.Q.s, society perceives them as merely quirky loners.

The old phrase, “One cannot tell a book by it”s cover” is an appropriate analogy here. Ican equate their issues with a cast. When one sees an individual with a cast, they know that individual has a broken bone. In regards TO Aspergers, these individuals look like functioning neurotypicals on the exterior. I will now explain that is not the case.

Aspergians have issues impairments with communication, appropriate behavior, and socialization, or assimilation in the neurotypical society if you will. Children with Asperger’s have excellent and advanced expressive language skills. (speaking to people) Aspergians have large vocabularies and are excellent at conveying data, information, what happened on a T.V. show, etc. i.e. factual information. They often have difficulty in reciprocal conversations.

Their difficulty conversing in social situations goes beyond a lack of interest. On the contraire, they silently wish that they could socialize better. I recall my son calling from college. He attempted to join groups because he wanted to fit in with other students. He attempted to join the Frisbee club, but impaired motor skills hampered that effort. He attempted to join in at parties but difficulties with reciprocal conversation squelched that effort.

My son called me at home making me aware of his efforts to fit in, have a girlfriend and more. He informed me of his efforts to make friends and socialize. My heart broke silently when he said, “Mom I try and try to fit in but it is not working, can you teach me?” I suggested he join the computer club and he responded by saying, I only like computers because I have nothing else. My computer is my only entertainment.

Aspergers creates havoc in terms of the individual’s ability to process information, strategize, and receive information. Hence, their difficulty with receptive language. (Processing and absorbing information) Reading body language and knowing how to respond when someone is sad, despondent, or distressed is difficult for Aspergians. I recall a gentleman telling me that he wished he new what to say or do when his wife was upset.

The man told me that it hurt him greatly because he wanted to say and do the right thing in such situations but did not know how.

Individuals with Aspergers are prone to sensory overload when presented with loud noises, strong odors, office environments where several conversations are going on simultaneously, and parties where background music is playing while people attempt to converse with them. It is not uncommon for Aspergians to have tertiary anxiety disorder which rear their ugly face in situations mentioned in the latter paragraph. Aspergers is a neurological condition.

On the surface they tend to be academic prodigiesin certain areas of academia. Hence their nickname as children of the little professor. In reference to language skills, many aspergians speak in a concrete format and upon further review in a reciprocal conversation their sentences may be out of context. Due to receptive processing language deficits, many individuals have difficulty with being given more than several steps through the auditory modality at one time.

It is a misnomer that Aspergians do not warrant speech therapy. On the contrary, speech therapy can assist children in honing expressive language skills i.e. using descriptors, expressing emotions verbally, describing an experience like a trip to the zoo in more than rote terminology. Speech therapy can also assist children with deficits in sequencing. An example of sequencing would be verbally summarizing a story in sequential order.

Aspergians tend to struggle with fine and gross motor skill impairment as well due to neurological impairment. Pincer grip issues can cause issues with difficulty in cutting with scissors, tying shoes, and other fine motor skill tasks. Tasks such as bowling with one hand, midline issues, riding a bike, and climbing trees can prove difficult as well. Hand grip is generally weak and hampers ability in hanging on to jungle gym rungs, etc. Hence they tend to be ostracized by their peers not only for their social deficits, but lack of athletic prowess as well. Thus, they may benefit from physical therapy.

Aspergians may commonly present with A.D.H.D., Non Verbal processing disorder, and other maladies. They may not appear to stim. Upon further observation however on will notice that many aspergians run their hands up and down a drinking cup, have feet or legs that are in constant motion, stretch arms bent at elbows while turning wrists, tap tables and feet, and whistle, to name a few. These may be used forms of mild stimming to release anxiety.

Aspergians tend to prefer simple foods void of mixed flavors when young. This is due to sensory overload from heightened taste buds. Simplified, a spaghetti sauce can put their taste buds into sensory overload. It is extremely common for Aspergians to have tactile sensitivities. As children, a scratchy tag or rough texture shirt can drive them to the point of sensory overload, which is resultant in an emotional meltdown. A rough shirt may feel like someone is scratching their back with fingernails.

Due to mind blindness and neurological delays in development that normally place them approximately four years behind their peers, children with Aspergers are prone to being bullied. Cognitive behavior therapy may be productive in assisting children with developing emotional skills.

Please attempt to understand these children. Do not minimize nor assume that they go on to lead independent fulfilling lives. Many of these children grow up to be underemployed due to inept social skills. A college degree does not guarantee a decent due to neurologically based social, and processing difficulties. Due to popular belief not every aspergian becomes an engineer or scientist. They are as diverse as you and I. In my sons case, he is advanced in English but struggles with math and he is an Aspergian.

The divorce rate is extremely high for Aspergians in relation to neurotypical couples. Some go through life having no romantic relationship or friends due to struggling with navigating the social maze. Without society’s assistance and a nationwide education program these children will not hone their wonderful talents.

Society owes these children AND adults a fighting chance. They cannot always control their behavior and depend on us (society) to equip them with the skills, guidance, and positive support network that they need to thrive as adults. Believe in children and they will believe in themselves.

In closing, I leave you with this food for thought. Not all disabilities are as apparent as a blind individual with a cane, an individual in a wheel chair, etc. Please attempt to look below the surface and understand. Thanks and stay well.

Mari Nosal M.Ed., CECE

Help for an Arts Foundation for Autism as seen on www.specialneeds.com

Help for an Arts Foundation for Autism

We were recently written about on specialneeds.com–>http://www.specialneeds.com/products-and-services/autism/help-arts-foundation-autism Please check them out, they are a simply great website with tons of special needs resources and articles.

Help for an Arts Foundation for Autism
Help for an Arts Foundation for Autism

This guest piece is written by a man passionate about his vision. David Berkowitz lives in Las Vegas, is an honorably discharged veteran and spent the last 20 years in sales and marketing. David lives with Asperger Syndrome and is raising three kids also on the spectrum. Looking to improve the lives of individuals with autism through technology and the arts, David wants to share a bit about his vision with our readers. He is trying to make a difference for autism, please help him in his efforts.

AUTISM ADVOCACY AND TECHNOLOGY NEWS ZONE
By David Joseph Berkowitz

As an individual with high functioning Asperger syndrome, a kind of autism, and the father of three kids who are also on the spectrum for this disorder, I have always felt a need to make a difference for the people with autism. I dream of establishing a national organization like the American Heart Association or American Cancer Society to make living on the spectrum better for those with autism related disorders. Utilizing my knowledge and passion for technology with my personal experience and interest in autism, I launched https://technewszone.com, on January 11, 2011. We are a state nonprofit seeking our 501c3. Our intent is to become a national Arts and Technology Foundation within the autism community.

We are a tech-focused state nonprofit. As we get funded we intend to help those on the autism spectrum by giving the gift of the arts and technology to make the lives of people with autism better, and to support their families and the educational facilities that serve them.

We are determined to make a difference in the lives of people with autism and their families.

Our Plan:

Our intent is to give the gift of the arts and technology through donated musical instruments, arts supplies, and tablets and along with proper training to children and young adults with autism, their families, and the educational programs and schools that could make use of them. We also plan to fund applications to use with the technology. We plan to help the arts in schools as well as promote inclusion of people on the spectrum.

Tablets and musical instruments are a very kinesthetic devices and they make learning easier for many people with autism. Tablets like Apple iPads aid in education and improve the level of involvement in many aspects of their lives. However, a decent tablet runs $400-$800 which is very expensive for most families of people with autism. In addition, musical instruments, the arts such as dance classes are very costly to the individual.

We also give the gift of music and the arts, and to save the music especially for people with autism and special needs. Schools are very short on funding especially for the arts and music. Most parents of kids with autism cannot afford instruments, band trips, choir events and other arts materials. We want to help.

We will donate musical instruments to people with autism and education to improve quality of life. In addition, we will give the resources to provide help to theatre programs in both private and in public schools, as well as other arts that accept people with autism in their programs. We strive to promote inclusion and acceptance.

In order to further the quality of life for people with autism we want to expose them to cultural events. We will donate tickets, to musical events, theater, and other arts to enrich their lives.

I feel that many people with autism are talented in the arts and music. Even if not talented in the arts, I feel they can definitely benefit from the exposure to arts, music and technology.

The first help we need is funding for our 501c3, as well as a lawyer or cpa to do the paperwork properly. We also need exposure such as on TV, in the newspaper, magazines, and web based as well. We can not do it alone and need support to make a real difference.

Please help us help others for the next school year.

We need your help to donate of tech, music and the arts for the school year starting in September. We want to give tablets to people with autism, as well as gift cards and tickets to concerts to make their holidays happier. Please go to our website now and make a donation today to help us make a difference for people with autism and their families. Even a $ 5.00 gift card or a donation on our website will make a huge difference in the quality of life for people on the autism spectrum.

We are also seeking corporate sponsors who can help us in the future as well.

In addition we need media exposure so please put a link to this article on your website as well.

Our tech and autism blog is https://technewszone.com, and we will soon have our autism nonprofit site up as well at http://www.autismhelpusa.com as well soon.

To make a donation–> https://technewszone.com/tech-news-zone-and-paying-it-forward-for-autism-zone/donate-today-autism-technology-music-arts/

I am smart, different, and am going about it on my own; I am not rich and need support so that I can help other people with autism. If you are interested in helping our organization, Autism Advocacy and Technology News Zone, Please do not hesitate to contact me.

About the Author:
Autism Advocacy andTechnology News Zone, Inc. A Nevada Nonprofit Corporation

www.technewszone.com
Twitter: itechnewszone

Facebook: http://www.facebook.com/pages/Autism-Advocacy-and-Technology-News-Zone-Inc

Email: davidb@technewszone.com

Tips to Encourage Development of Social Skills of Children on the Autism Spectrum in the Classroom by Mari Nosal.

Mari Nosal
Mari Nosal
Mari Nosal

http://marimouth.wordpress.com/2012/05/29/tips-to-encourage-development-of-social-skillsof-children-on-the-autism-spectrum-used-in-my-classroom/

This is an interesting article with regards to social skills for children on the autism spectrum recently published by Mari Nosal. I wish that there were more program for autism when I was growing up, the problem is that if you do very well academically the system ignored difficulties with athletics and social skills to a large degree when I was in School in the 1980’s.

Here is the fine article–>

1) Set aside a table in the corner of the room. Make sure ample space is provided in proximity to other activities. In doing so, the child on the autism spectrum will not feel crowded or feel as though their personal space is being intruded upon.This should be left out as a long-term project and can be used to encourage non threatening solitary play during times when the child is anxious and needs space. It can also be used to gradually encourage participation in a group project, even if the child is parallel playing.Place a puzzle, snap together model, or construction project on the table. Children on the spectrum are often attracted to items like these. They are great as they can be done in groups or as a solitary activity.Children on the Spectrum will generally allow a trusted adult to assist with the project. On the first day allow the child to work on the task alone and get comfortable with surroundings. On the second day ask if you can participate in the project.Other children will inevitably wander over out of curiosity and ask to join in. When the child is engrossed in the project let him/her know that you need to step away for a moment. Make your absence short, no more than a couple of minutes. Each day lengthen the time that you step back from the group by a couple of minutes.This can be successfully orchestrated in a one on one card game as well. Play cards one on one with the child. As other children become curious and ask to join the game hand your cards to one child and step aside for a few minutes using procedures already mentioned.If this is done slowly over a week or so you should be able to start coaching versus being involved in what will have become a group project at this point. Intervening will be done at this point only during the presence of behaviors or peer difficulties.

Tabletop long-term projects can also be used to redirect a child to a solitary activity when the signs of over-stimulation appear.

2) When it is group cleanup time in the classroom, children on the spectrum can get anxious, and overstimulated if too many children are in close proximity to them. Using an example of putting wooden blocks away, discreetly place some blocks a few feet away from the other children who are cleaning up. Again, this will assist the autistic child in feeling non – threatened.Ask the child to please put the blocks away in the bin. He/she will generally comply dropping the blocks in the bin quickly and walking away. As time goes on move the blacks slightly closer to the other children during clean up time. As the child is introduced to this concept slowly and over a period of time they will generally feel comfortable after a week or two.These ideas can be adapted to group play at home as well. Invite a maximum of two or three children over as more will overwhelm a child with social, emotional, and sensory issues. Initially, sit with the children and encourage group play with a play dough kit, race track, etc. slowly excuse yourself from the activity for several minutes. Gradually extend your time without intervening in group play. Your goal will be to become a coach observing from afar, only intervening when difficulties regarding the social situation arise. This is an extremely slow process the can literally take a month or more to accomplish.

These socialization tips can be quite successful, but the child must not be pushed before they are ready. The ingredients to success are a safe non threatening environment, patience, and praise.

Mari Nosal, M.Ed., CECE

I was on Special Needs Talk Radio, Autism As They Grow with Bobbi Sheahan!!

Autism Help USA/Technewszone
Autism Help USA/Technewszone
Autism Help USA/Technewszone

I had the opportunity to speak on Bobbi Sheahan and Amalia Starr’s Special Needs Talk Radio, Autism As They Grow’s Second to last show. I really appreciate it.

We are trying to make a difference for people with autism for quality of life, education, vocation and to help them find enjoyment in their lives, and promote inclusion as possible in schools. We are trying to do this by giving the gift of music, the arts and technology and by partnering with tech like Android, Blackberry and Apple Ipad Tablets to schools and individuals, music, and arts related organizations and people to help us get funding and reach people.

We would love to be on more shows, to gain support and make a difference.

Here is a link to the show–>http://www.blogtalkradio.com/specialneedstalkradio/2012/05/24/autism-as-they-grow-1

http://www.blogtalkradio.com/specialneedstalkradio/2012/05/24/autism-as-they-grow-1

A bio on Bobbi Sheahan–>

Catch my new show, Autism As They Grow, on Special Needs Talk Radio, Wednesdays at 9:30 p.m. EST!

Do people suggest that your child is different – really different? Are you wondering how to make sense of your child’s behavior (or your spouse’s – or your own)? Don’t despair; help is on the way! Bobbi Sheahan and psychologist Kathy DeOrnellas, Ph.D., offer themselves as your scouts in the field. They have valuable information to share – from the moment you realize your kid is different (“My, what a quiet baby I have!”), to the self-righteous moms on the playground, to holding your marriage together in the realm of routines, they candidly tackle autism spectrum issues such as picky eating, bedtime battles, potty training, speech delays, discipline, early intervention, sibling rivalry, and much more!

Bobbi Sheahan is the mother of four children; Grace, her second-born, has been diagnosed with autism. Her new book, What I Wish I’d Known About Raising a Child With Autism: A Mom and a Psychologist Offer Heartfelt Guidance for the First Five Years, has been published by Future Horizons, the world’s largest and most authoritative autism publisher. Bobbi says, “Dr. Kathy DeOrnellas, my co-author, knows more about autism than anyone you will ever meet. Since I can’t bring you to her office – and I would if I could – this book is my way of bringing her to you.” In Chapter 2 (entitled Autism 101), Dr. DeOrnellas brings you more than 20 years of experience, teaching, and research in the field of autism in a readable, conversational manner.

Autism is not only a challenge to a family’s emotions; it can also be a financial drain. Bobbi says, “With families routinely spending thousands of dollars out of pocket each year, we are here to help to point families in the direction of meaningful, affordable help.”

For her part, Bobbi pulls no punches in telling the story of her family’s road to discovering Grace’s autism. “The entire family comes along on this journey, believe me,” she says. “There is a reason that my favorite chapter heading is: Fun and Folly With Self-Diagnosis: Is Asperger’s German for Engineer?”

The book is also enriched by quotes from more than two dozen families who have been breathtakingly honest about everything, from speech delays to potty training, from doing battle with professionals who are supposed to be on your family’s side; this book is an indispensable resource for families. From reading lists to guidance about building a personal and professional support system, the authors offer a crash course to families who don’t have time to waste. The wit and humor with which the information is conveyed is a much-needed breath of fresh air for families who desperately need a break – and a friend.

Available now at Future Horizons, Amazon, Barnes & Noble, Borders, and wherever books are sold!

Please listen to the show, I am on at the halfway point. Please share with people in the media.

Please help us to help others, we can not do it alone!!!

How to reach us:

Http://technewszone.com

Or FACEBOOK–>http://www.facebook.com/technewszone

or YOUTUBE–>Http://www.youtube.com/technewszone

Or Itechnewszone on Twitter!!

Thank you I appreciate it.

A Very Special Mothers Day To Special Needs Moms by Mari Nosal

Aspergers
Aspergers
Aspergers

I really like this article by Mari Nosal. I meant to publish it but it slipped my mind. It is quite wonderful. It takes strength to be a parent of special needs kids. For some of us it is a struggle.

http://marimouth.wordpress.com/2012/05/11/a-very-special-mothers-day-to-special-needs-moms/

I was perusing the numerous racks of mother’s day cards recently. As is characteristic of me, my experience jettisoned into a silent analytical observation. I made mental notes pertaining to the responsibility afforded to a mother. It is a 24-7 job. Mothers must be on call to jump to attention for a whimpering baby with a wet diaper or hunger pangs. Mothers must be on constant alert for toddlers unrolling a roll of toilet paper that he is busily spreading from room to room with the roll unraveling behind him as he gleefully runs.

We are a tough breed who gets attacked with a projectile shot of vomit that lands on our bodies with the force of a speeding bullet. We wipe runny noses with an almost unlimited amount of tissue that seems to be pulled from thin air. We spend years of sleep deprivation from waking at all hours of the night to nurse sick children back to health. We spend the better part of our child’s teen years pacing the floor when our new drivers are past curfew , conjuring all the terrible things that might have happened to them within the confines of our mind.

Through challenges, trials, tribulations, childhood illness, mothers shrug it off and unquestionably support their children day after day. We never notice the first year of life when you smell like spit up, or that poopy diaper that leaked on your lap. If the child is out of baby food etc. we have all made a trip to the store smelling like the latter because our worries about looking presentable are blinded by the needs of our child.

There you have it. All mothers are special, but special needs moms are different. They are humbled, challenged, tough, protective, and cheerleaders for their children beyond the call of duty. They deal with doctors, teachers, therapists, and more who tell them their child will never meet a certain milestone. Milestones that traditional parents take for granted.

A word of caution, never say your child won’t, can’t, never will, or any other phrase which reeks of pessimistic projections for their child. Like a cat, special needs mothers have hidden claws behind their fingernails that will protrude when they are in attack mode resultant from any threat, or negativity aimed towards their child or the child’s mom.

Special needs parents will expect nothing but the best of care for their children. They are not afraid to vocalize and take action until their child gets just that. While other parents seek out babysitters for a weekly date night, many special needs parents silently stay home to care for their child’s demanding needs. It is much more difficult to get sitters for special needs children, and medical, and therapy issues can leave parents financially strapped. While other parents complain that their child did not make captain of the soccer team, these parents merely want their child to make the team and socialize with peers.

While parents worry about their child being popular, special needs parents worry about their child having friends at all. We shuffle our children to numerous therapy appointments, social groups, pediatricians, tutors, and specialists, while managing jobs, homes, and the stares from people in public.

Through it all we realize that we can climb mountains, make it to the summit and down again as we develop determination and strength to fight for our young like nothing else.

Now, back to my story about visiting the card shop. None of those cards appeared to be directed at special needs parents so I am providing my version that I would design for all of you out there.

I agree, never give up, keep trying, you never know what you can achieve if you really try.
==> A Mari Nosal Hallmark Card for Special Needs Mothers on Mother Day, simply brilliant.

To A Special Needs Mom (A Hallmark moment)

Mommies, you always look beyond my disability and see my talents

To you I am a diamond in the rough black on the exterior but shiny underneath

As my daily cheerleader you slowly buff me off to reach the shiny diamond that I am inside

Without you in my corner I would never have made it as far as I have

We have proved doctors and therapists prognosis wrong repeatedly

With you in my corner we will keep proving them wrong

Thanks for believing in me and helping me when others give up

Thanks for showing your love for me every day

Most of all, thanks for being my mommy

Happy Mothers Day Mommy from your special needs child to my very SPECIAL mommy

And from me – I wish all fellow Moms a happy Mothers Day

Mari Nosal, M.Ed., CECE

Empathic Kids by Dr. Michele Borba

Empathy in Children
Empathy in Children
Empathy in Children by Dr. Michele Borba

I connected via Twitter with Dr. Michele Borba ED. D, who is an amazing speaker and educator. She said that we can publish some of her articles. They are excellent and appeal to neuro typical and special needs children as well.

She like Mari Nosal are accomplished writers, and experts in their fields.

One strong characteristic of morally intelligent children is that they are empathic and concerned about others. An important point to remember is that while our kids are born with the potential for empathy and generosity, those traits aren’t guaranteed. Researchers have discovered that a strong commonality of those kids who acquire them is how they were raised. That means parents can be enormously influential in helping their kids be concerned about others needs by prioritizing it in their homes. It’s a slow, gradual evolution, but if you are consciously boosting those traits as a parent now, chances are much stronger you’ll have success and your child will develop those traits.

Boost the concept of gratitude into your daily living. We seem to have a lot of “gimme” kids these days and it’s because they’ve learned that their parents will oblige their every whim. So don’t! Establish guidelines and stick to them. My girlfriend noticed her mother-in-law was overindulging her kids in material gifts and finally told her that was not the kind of kids she wanted to raise. She asked her to please reduce their number of presents and put the money instead in their college fund. The key here is the mom determined how she wanted her kids to turn out, and then consciously begin raising them that way. Stretch your child to think about other people’s concerns and needs. Here are a few ideas that might help you:
Have her switch roles. The next time there’s a conflict between your child and a friend (or between you and your child) ask her to stop and think how the other person would feel if the roles were reversed. Then ask her to talk about the problem AS IF SHE WERE THE OTHER PERSON. “What would the other person say and do?” If she is very young, it is helpful to use puppets so that each puppet can represent the person in the conflict. It builds empathy.

Call attention to insensitive behavior. Any time your child acts unkindly, use it as an opportunity to help him become more sensitive to the feelings of other people. Just point out the impact of her actions: “Telling Bert to leave because you wanted to play with Sally was inconsiderate. How would YOU feel?” “Not asking Daddy if he wanted to watch a TV show was unkind. How would you feel?”

Be an example of generosity. Try to find natural ways to help her “give” to others so she understands the joy giving can bring. Start by doing it yourself and having her watch and do it with you. Here are a couple of ideas: “The neighbor is sick; let’s make an extra bowl of soup and bring it to her.” “Daddy is so tired; let’s surprise him and stack the newspapers so he doesn’t have to. ” Make giving natural and fun but help her learn to GIVE.

Expect him to share. This is one of the first moral behaviors we need to tune up in our kids starting at around 2 or 3 years of age. When he is two you can structure his sharing: “It’s his turn, then your turn, then his turn.” Little kids sometimes need an oven timer as a reminder that the other person should still be allowed to play with the toy. Before friends come over, structure “sharing” by asking him: “What things will you share with your friend?” “What do you think he would like to play?” Put away things that are very special that may cause problems. What’s important on this one is to help your child learn to think of others’ needs and feelings.

http://www.micheleborba.com/Pages/ArtBMI10.htm

A bio on Dr. Michele Borba–>

About Dr. Michele Borba

Dr. Michele Borba is an internationally recognized expert and author on children, teens, parenting, bullying and moral development. Her work aims to help strengthen children’s character and resilience, build strong families, create compassionate and just school cultures, and reduce peer cruelty. Her practical, research-based advice is culled from a career of working with over one million parents and educators worldwide.

National Media Contributor
Media outlets regularly depend on Dr. Borba as the “go-to” expert on parenting, bullying prevention, education and child/teen issues. She is an NBC contributor appearing over 100 times on the TODAY show and is the regular parenting expert on Dr. Drew’s Lifechangers where she comments on late-breaking news and offers realistic solutions. Her work has been featured on Dr. Phil, Dateline, The View, The Doctors, Fox News, The Early Show and CNN and well as in Newsweek, People, Good Housekeeping, Chicago Tribune, U.S. News & World Report, Washington Post, The New York Times and The Globe and Mail. She was an MSNBC contributor to two televised “Education Nation” specials.

Award-Winning Author
Dr. Borba is the award-winning author of 22 parenting and educational books translated into 14 languages. Titles include: Don’t Give Me That Attitude!, Parents Do Make A Difference, The Big Book of Parenting Solutions: 101 Answers to Your Everyday Challenges and Wildest Worries, and Nobody Likes Me, Everybody Hates Me!, No More Misbehavin’, Building Moral Intelligence (cited by Publishers’ Weekly as “Among the most noteworthy of 2001”), and Esteem Builders used by 1.5 million students worldwide. She writes as the parenting expert for Dr. Oz’s website, powered by Sharecare as well a daily column for her blog, Dr. Borba’s Reality Check.

National Spokesperson
Dozens of major corporations, including General Mills, 3M, Ragu, All Detergent, Splenda, Office Depot, Similac, Galderma, V-Tech, Cetaphil, Learning Curve, Florida OJ, and Mastercard, have enlisted Dr. Borba as a media spokesperson. Her services include conducting satellite-media tours (radio, TV and print) as well as live Facebook chats, blogger events, U-Stream Q and A’s, and event speaking. She served as a consultant for Wall Mart, McDonalds and Johnson & Johnson on parenting and is an advisory board member for Parents magazine.

Bullying Prevention, Parenting and
Character Development Expert
Dr. Borba is recognized globally for her work in bullying prevention and character education. Her strategies to mobilize student bystanders to reduce peer cruelty were featured on Dateline and NBC’s Nightly News. She appeared as the bullying expert in the documentary, “Bullied to Silence” and is on the advisory board for the film “The Bully Project.” Her proposal: “Ending School Violence and Bullying” (SB1667) was signed into California law in 2002.

Her thirty-year career has been devoted to developing a framework to strengthen children’s character and build moral school climates. Her best-selling book, Building Moral Intelligence, and her Character Builders program for young children (Respect, Responsibility, Caring, and Peace-Making) are used in hundreds of schools and organizations worldwide. She served as a consultant for the Center Resource Group for Character Education and Civic Engagement for the U.S. Department of Education and is on the board for Character Education Partnerships.

Motivational Speaker
Dr. Borba has presented keynote addresses throughout North America, Europe, Asia and the South Pacific and has served as a consultant to hundreds of schools, parent organizations, and corporations on bullying prevention, character education, and raising strong, caring kids. Audiences include McDonald’s Global Women’s Leadership Network Conference, American Academy of Pediatrics, Boys and Girls Clubs of America, Character Plus, Phi Delta Kappa, Character Education Partnerships, the Malaysia Ministry of Education, and La Leche League.

Credentialed Expert and Educational Consultant
She received a Doctorate in Educational Psychology and Counseling from the University of San Francisco, an M.A. in Learning Disabilities and B.A. from the University of Santa Clara, and a Life Teaching Credential from San Jose State University. She is a former classroom teacher who has worked in regular education as well as with children with learning, physical, behavioral and emotional disabilities, and in a private practice for troubled youth.

Her numerous awards include the National Educator Award, presented by the National Council of Self-Esteem; Santa Clara University’s Outstanding Alumna Award; and the Award for Outstanding Contribution to the Educational Profession, presented by the Bureau of Education and Research. She was named the Honorary Chairperson for the Implementation of Self-Esteem in Hong Kong.

Wife and Mom
Dr. Borba lives in Palm Springs, California with her husband and has three grown sons.

Myths And Misnomers Of Aspergers Characteristics – A Light Hearted Observation by Mari Nosal

aspergers
aspergers
aspergers by Mari Nosal

I am Asperger’s, a brainiac, at times clueless at others. I am hyper aware of many things, do not notice some of the basics. I get it. My 3 kids are on the autism spectrum as well. I can totally relate. I have been trying for over a year to find supporters, donors, and sponsors to help us to help people with autism. We need help with technology, music like instruments, and the arts-tickets, art supplies to help people on the spectrum.

Here is a quirky but cool article by Mari Nosal an autism expert and educator:

Recognition and identification of Aspergers syndrome has skyrocketed in the last decade. Unfortunately, the way it is portrayed through the media venue has provided individuals who do not interact with families or children directly involved with a stigmatized lenses of the syndrome. ie Sheldon Cooper on the Big Bang Theory void of the ability to display emotion, Gregory House of the House series who expresses a diagnosis to a patient with apparent disregard to their feelings, Jerry the Lawyer of Boston Legal who allegedly had Aspergers and was portrayed with comorbid maladies such as grabbing his thighs standing on tippy toes and running away making odd noises.

In my opinion these television characters provide a disgraceful impression to society in regards to Aspergers. Successful Aspergians who work beside you and your peers. Aspergians who are parents, doctors, lawyers, scientists, teachers, students and more.

I wish to present a portrayal of some misnomers regarding Aspergers . I will draw from personal experience that I have acquired both as an educator and interactions with family members on the spectrum from both a serious and humorous perspective. These are merely my personal observations.

1) Individuals with Aspergers are incapable of lying:

This is a mistaken perception due to their penchant for bluntness. i.e. If a teacher wants to know who misbehaved in class the child with Aspergers would be ones best source of information. Bluntness is not the same as lying however. Like any other child, children with Aspergers may stretch the truth to avoid trouble.

If Aspergians can’t lie, than our family was not informed of this fact. I recall picking up my son at preschool. He was four years of age. He had been displaying behavioral issues such as sticking his fingers in his ears and closing his eyes when the teacher gave him directions. He would respond by saying, “I can’t hear you or see you, LALA,LA.”

I used a candy bar as positive reinforcement. This was a treat because candy was not freely available at home. When I picked him up from preschool, I would immediately ask how he behaved for the teacher. If the report was good, he received a candy bar.

I recall picking him up from preschool and asking how his day had gone. His eyes darted from me to his teacher. He replied with a quick, “Mom come on out in the parking lot and I will let you know how I behaved. “I foiled his intent to give me a good report when we were out of his teacher’s earshot.

I responded by telling him that I would ask his teacher directly about his behavior before leaving the classroom. My son disappeared. I heard the bathroom door slam shut in his classroom. He had evidently run in there to hide.

I would consider this an example of the capability an Aspergian has to strategize and to lie with the intent of reaping the reward of a coveted candy bar. My sons plan was foiled by my intervention. However I will add that my son’s actions were within the norm for any child seeking to avoid losing a reward. Heck what adult for that matter has never done something similar such as calling into work feigning an illness to take a day off from work:-0) (cough,cough)

2) Individuals with Aspergers cannot display empathy

I would argue this assumption. Many have difficulty verbalizing emotions hence societies perception of lack of emotion. On the contraire, Aspergians get emotional overload resultant from struggles with compartmentalization of sensory intake. I merely have to look back on the gift my son made at age six for me to confirm his capability to empathize. I had the flu and was bed bound. I woke to queries of “mom are you sleeping”? Well son I am awake now son:-0

There at my bedside stood my son. In his hand, he proudly displayed a paper plate dripping with a rainbow of food color. I will refrain from describing the state that my kitchen was in resultant from my son’s work of art. You can use your imagination to conjure up what a rainbow of food coloring spattering’s did to my house:-0)

Was this a verbal expression of emotions? No it was not. As an Aspergian, he has difficulty with naming his emotions. My son had displayed his concern and yes, empathy for me through his actions instead of words. Expressions of concern were done in his unique way via actions versus words.. It was empathy none the less.

We won’t broach my emotional state when my flu ridden body saw my rainbow colored kitchen:-0)

3) Individuals with Aspergers are not capable of manipulating their environment

I will elaborate and confirm their skill – set with an experience had during homework time in my school age class. I was tutoring a nine year old with Aspergers. Everything was going well during math homework which was compiled of rote facts. He was always compliant when homework required the use of his wonderful rote memory.

We moved on to reading passages. I was attempting to assist the child in answering questions regarding the passage he had read. He was expected to summarize the passage which required processing skills. Rote work being his forte, his demeanor quickly changed. He attempted to stonewall. I persisted. The child looked up at the clock and said, “You know Miss Mari, my mother will be picking me up very soon”. I was silently amused at his comment. What he was stating in a diplomatic manner and silently thinking was, Miss Mari, get off my back will you please? I would surmise that this showcased his capability, and attempt to manipulate his environment.

Recently my son was attempting to draw me in to one of his discussions that resemble a verbal dissertation. These verbal tugs of war always occur when we are discussing a topic that he finds distasteful such as chore requests, manners, behavior, etc. I have realized that his verbal tug of wars is the direct result of his intent to draw me off the topic at hand. My response of choice is to tell him that the discussion is over and walk away. We must pick our battles carefully to reduce what I call the deaf ear syndrome. If the discussion is going in loops walk away. No audience takes the fun out of it.

During the conversation I told my son that I would not be roped into his verbal dissertation. His response was, “you just did Mom. You answered me back”. One can see the manipulative power struggle that is evident here. I ignored my sons comment. His goal was to veer me away from the topic at hand. I continued on my way and held my ground. To continue our debate with have proved futile as we would have gone around in circles repeatedly. I attempt not to get drawn in to a rousing game of lets have a debate until mom forgets what she wanted me to do in the first place. I merely walk away and hold my ground.

4) Individuals with Aspergers have no sense of humor

This belief stems from the fact that Aspergians tend to perceive statements from a literal perspective. Dual meanings or ideas in jokes are difficult to comprehend. I worked with a I was a one on one teacher with a ninth grade girl with Aspergers. I recall excitedly telling the teenage girl that she was on fire because she had comprehended an important concept we had worked on for an extended period of time. The young lady responded with stiffened limbs. She repeatedly demanded to know why I had said she was on fire. She kept saying “I am not on fire, I am not on fire, why do you say I am?”

Aspergians most certainly do have a sense of humor. One would merely have to observe the night I came home from a nine hour shift in a group home. I was extremely tired and fumbled for my keys in the dark night. Suddenly, a figure jumped out of the bush saying Boo I am Mari. I must have jumped 20 feet. My son had apparently downloaded a photo of me, cut a mask out of cardboard, and glued my picture on the front complete with eye holes. Hence, the reason he called it a Mari mask. Upon entering the house my other son was wearing one as well. This was definitely an example of my son’s ability to create a humorous experience.

In closing I would like to convey the fact that individuals with Aspergers present with the same range of emotions as neurotypicals, they merely convey those characteristics that every human being possesses in a way that works for them.

Perhaps we could all start looking at how we are similar versus how we are different. Accept each others differences and harness them to create a more copasetic and positive society. No two Aspergians are alike anymore than two neurotypicals. Like Baskin Robbins ice-cream, humans come in 32 flavors. Embrace that individuality, forget the them and us ideology and replace it with a WE will get more accomplished than a ME. I will leave you with this question and provide an answer to ponder.

Question: Who is more important, the Physician or Trash Man.

Answer: They are both equally as important. Without a physician we could not TREAT disease and we would perish. Without trash men we would HAVE disease and become ill.

This is just a thought to ponder regarding differently abled individuals and society at large.

Regards,

Mari Nosal, M.Ed., CECE

My Guide- A Poem to Remind educators believe in your students and they will believe in themselves by Mari Nosal

Mari Nosal A Poem

This is a fine poem and statement that educator’s, parents, bosses need to show confidence and faith in their students, children etc, and that will inspire confidence in them. I am a parent, and president of a small nonprofit trying to help people with autism, and education via tech, music and the arts. I love it.
______________________________________________

Oh teachers listen closely

For this you need to know

My future rests right in your palm

I need you as I grow

My destiny is yours to shape

By words you choose to use

Encourage me, tell me I’m great

Your power do not abuse

Believe in me and I will shine

I will not let you down

Give up on me and let me fail

My choice will be to drown

Please teach me all you know my friend

Do not give up and leave

And I will thrive because I knew

In me you did believe

I have the talent to succeed

But sometimes feel lost

Please help me so I find my way

No matter what the cost

Don’t leave me on the tough days

I need to know you’ll stay

For you help me to grow and learn

And assure me i’m o.k.

Support me, guide me, and teach me

My fate is up to you

For with your words I’ll fail or win

It is up to you you’ll see

Please don’t leave nor write me off

I am worthy of your time

I promise I’ll not fail you

To give up would be a crime

My future is up to you you’ll see

In you I do believe

I will succeed and fulfill my dreams

If you walk with me

In order for me to succeed

I can not walk alone

Don’t give up on me and walk away

My emotions will turn to stone

Teachers listen closely

I need your help today

Help now and I promise

I will make you proud one day

MARI NOSAL, M.Ed., CECE

http://marimouth.wordpress.com/2012/04/27/my-guide-a-poem-to-remind-educators-believe-in-your-students-and-they-will-believe-in-themselves/